Tag Archives: Health

Seroquel

Dr. L called back the other day – Rick left an urgent message. Apparently he’d been out of the office for about a week and no one thought to tell us when we were leaving messages at the front desk.

He called in 25mg tabs of Seroquel (generic = quetiapine). We were told to give him 1/2 a tablet the first three days, then increase to a full tablet – taken at bedtime.

Seroquel is an “atypical anti-psychotic.” It’s used to treat schizophrenia, depression in bi-polar patients, and “to treat or prevent episodes of mania.”  The initial effect is drowsiness – which is why it’s given at bedtime – and then it’s supposed to help with the meltdowns through the next day.

As usual, I did a lot of reading.  There isn’t a lot of information on prescribing Seroquel to children, but that seems to be the case with many meds.  The worst I could find was that it caused nightmares in some and weight gain in most.  (Colin needs to gain weight – he’s incredibly skinny, even though he eats plenty.  He’s in constant movement, so he burns far more than he cares to eat. Being a picky eater doesn’t help!)  Many people compared it to Abilify saying that Seroquel helped with the anxiety in ways that Abilify didn’t – another plus for us.

Wednesday night, we gave him the 1/2 pill along with a now reduced  dose of Clonidine (0.1mg – down from 0.2mg). 

He got downright paranoid.  He kept getting up, telling us there were storms coming (yes, there were clouds outside and some lightning far off in the distance). At one point, he made me come look out his window at the cloud that “looked like a head.”  He just kept getting up. He was so nervous!  At one point, he came out and said, “I can’t breathe anymore and I can’t talk anymore.”  I said, “Honey, you are breathing…and you’re talking to me right now, okay?”  He went, “Oh. Okay,” and went back to bed.

He popped back up around 10:30pm – just when I thought I was in the clear! – and used the bathroom.  He went right back to bed, though, and didn’t get up until 6am. (And he slept in his bed!)

Last night… I honestly just screwed up. I completely forgot about the 1/2 pill to start and handed him a whole one.  I realized what I’d done entirely too late. So he was given 25mg of Seroquel and 0.1mg of Clonidine.

About 30 minutes later, he became incredibly drowsy.  It was almost 8pm (bedtime) anyhow, so I said, “Colin, why don’t you go lay down? You look very sleepy.”

He gave a half-hearted, “I don’t wanna go to bed yet, though,” and then let us lead him to bed without any further discussion.  He laid down and passed right out.

He slept until 6:10am.  That’s over 10 hours of sleep. I think the last time he slept that long, he was sick.  (That’s usually how you can tell he doesn’t feel well – he gets tired and still.)

We didn’t notice much of a difference in him yesterday – it will be interesting to see if the full dose helps at all today.  He woke up bright-eyed and bushy-tailed – his usual spunky, early morning self!  He got in trouble for messing with the dogs and was sent to his room while I made breakfast.  He pouted, but didn’t cry about it.  Otherwise, it was a wonderful morning.  We’ll see how this goes.

Our sitter made it through her first full week!  I handed her a fat wad of cash last night and her eyes lit up. 🙂  I don’t think she’s going to quit on us.  She seems to genuinely like our crazy kids and she’s come up with some great ideas to help keep them in line. Best idea so far?  A schedule.  She thought of that on her own.  Her brother has ADHD as well (though, she admits, far less extreme than Colin) and she understands better than most, although she still doesn’t quite grasp the autism aspect. The only downside I can see so far is that our house is COVERED IN GLITTER.  Covered.  Especially Colin’s room, since he snuck the container of glitter they’d been using for art projects into his room and shook it all over the place.  Our house is very sparkly now!

In other news, my stepdad’s mother passed away yesterday.  She was 102 years old.  Her funeral is on Tuesday.  I’m not sure if we should tell the kids – I don’t know how to.  And honestly, they know her, but she wasn’t a vital part of their lives.  If they never saw her again, I don’t know that they would notice.  Robbie might.  I could see him ask Pop (my stepdad) one day where his mom is.  But even that’s a very slim possibility.  I just don’t know.  Kay is going to come over early on Tuesday to watch the boys so we can go to the funeral without them.

I’m not sad for her.  I’m sad for my stepdad because I know he will miss her.  But she lived a very full, wonderful life.  These last two years have been the worst for her – she had to be moved out of her nursing home apartment and into a full time care room. She wasn’t allowed to leave the room without an escort.  Her few joys were basically taken away – she couldn’t go play cards with her friends when she felt like it, she couldn’t even go to the mailbox on her own.  She went from a cute one bedroom apartment with a balcony and her plants and knick knacks to a hospital room.  I think she was ready to go.

I’m sad for my mom, too, because I think her mother-in-law gave her some sense of purpose.  Mom was the most likely to take her to church or the zoo or out to the park.  If it wasn’t for my mom, the adventures would have been very rare. 

Rest in peace, Lucille.

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Words words words

Words are failing me lately. I have thought of so many things to blog about that I don’t know where to start. None of these things go that well together, yet on their own, they would each make for a pretty lackluster blog.

And yet… I feel odd not writing for days on end. 

We’re still struggling with medication issues.  Colin seems to be sleeping better, which is good.  He’s still wandering out at lord-only-knows-o’clock to sleep on the couch, but at least he’s sleeping.  He seems – to me – quite out of control on the 20mg Adderall XR and yet he’s having “green” days in school, so I’m not what we should do.  Mornings and evenings are more of a terror than usual.  Even sending him to his room doesn’t work, because he physically can’t stay in there for more than a few seconds at a time – door open or shut, it doesn’t matter. He will pop his head out or ask a question or tell you something every flippin’ 30 seconds.  I would honestly say mornings are better than evenings, but even that’s a struggle.  Within 5 minutes of waking up (if you’re lucky) he’s at 10 on the hyper scale. 

Evenings? He’s on 12.

The mixed blessing is he’s become a bottomless pit.  He’s out-eating all of us at most meals and constantly asking for snacks!  Hopefully he’ll gain a few pounds!

We won’t see the Psych until 5/31 due to scheduling issues.  Phone calls haven’t seemed to cut it – again, I never feel like we’re explaining things quite right.

 

Last Friday was Robbie’s Kindergarten Graduation.  So much cuteness.  I wish I could share some pics without violating the privacy of others, but I’ll just keep them to myself for now.  They put on a little production to show off what they’ve learned this year.  This school has been so good for Robbie. He’s learned a good bit of Spanish as well as improved his handwriting and spelling. He’s learned dance, theater and art basics.  He’s just blossomed in ways he never would have at the daycare we had him in last year. 

I was surprised to learn that most of the other parents are holding their kids back and repeating kindergarten in the fall – even kids that are technically old enough to be in 1st grade without any testing.  Here I am testing to push him ahead.  I don’t feel that my choice is any better or worse than those parents holding their kids back.  Sure, he may mature a little slower than the other kids in his class, but what about the ones being held back? They’ll be hitting puberty before any of their peers.  I have to imagine that it all evens out somewhere along the way.  As long as he’s capable, I want to give him opportunities to excel.

 

The other thing that’s been weighing on my mind…is me. In fact, I’ve been pretty self-absorbed lately.  Not entirely a bad thing from time to time.

I was going through the process to get the Lap Band procedure done.  Rick had it done almost 2 years ago and has just done great.  I even started a little side blog about it – http://eyeononederland.wordpress.com

Today, I got the call that I don’t meet insurance requirements.  No lap band for me.

However, through the past two months of working on the insurance requirements (the ones I was able to meet), I learned a lot about myself.  I’ve had a mental switching of gears and – lap band or not – I’m ready for change. I’m taking better care of myself and I have a goal in mind.  I want to lose 70-80lbs over the next 12-18 months.  Not unrealistic. 

I have studied nutrition so much over the past 15+ years – I know the ins & outs, I understand why I crave the things I do, etc.  I have always approached this part of my life scientifically – I’m not one for “fad” diets or insane exercise routines.  I love attending boot camps when I can afford to, but we also have a regular gym membership and my office building has access to a great walking path with shade that winds around a pond.

In anticipation of getting lap band, I had Rick take “before” pictures for me.  Front, side, back… the view from all angles were such a painful reality check.  The next day, I renewed my vow of fitness and nutrition.  I’ve been journaling my food and exercise – today is just day 4, but I already feel a difference.

I’m rambling. If you want to know more about all that, please take a look at the other blog… I ramble there even more. 🙂

 

I’m feeling a bit deflated at the moment.  Stress with Colin, summer approaching, lap band denial… I’m ready for that week in July when Rick and I can just relax and escape from everything for a bit.  I need to recharge.

My kingdom for a nap right about now. 🙂

Robbie’s Trip to the Allergy Center

Robbie has always suffered from allergy issues – sneezing, coughing, runny nose, itchy eyes. About a year ago (yes, ayearago), our pediatrician gave me a list of pediatric allergists that might be able to help.  I filed away in my black hole (aka “my purse”) and forgot about it.  Each time I’ve cleaned out my purse (honestly, only about twice in that year!), I’d see the papers and think, “I should call one of these doctors and set up an appointment. I’ll do that this week.”

And I never did.

Well, I didn’t until about a month ago.  I knew Robbie and I had a couple of days off together, so I tried lining up doctors appointments. I scheduled him for allergy testing on April 30th (yesterday).

Robbie and I showed up yesterday and checked in. I’d filled out all the paperwork online, so we didn’t have long to wait. He’d just settled in with a tablet when they called us back.

The nurse was very friendly and took down his information. The doctor came in and we talked for a bit while Robbie wrote out various messages for her on a magnetic tablet they had in the room (just like the one that was in the waiting area). His handwriting amazes me more and more every day.  His spelling does, too.  I’m constantly amazed by how smart he is – sometimes I forget he’s only 5 years old.

She decided that allergies were definitely a possibility, based on the info we’d shared.  Another nurse came back in to prepare us for the testing and answer some questions.  They used a plastic device like this for the testing:

Robbie was able to touch it beforehand and see that it wasn’t anything terribly scary.  He’s so much like me at times – he wants to really know what’s going on.  Once when I was a kid, a nurse gave me a TB test…but instead of saying that, she said, “I’m just going to put little bunny prints on you!” She grabbed my arm and I FREAKED OUT!!  I was maybe 7 at the time. I already knew what a TB test was and if she had justsaidthat, I wouldn’t have gotten upset.  I wanted to make sure Robbie understood everything we were doing.  He also knew that we were doing this so we could help him feel better.

They set him up nicely with a little DVD player and some books.

He started to flare up on some patches almost instantly.

Ten minutes in, I knew that whatever was in “B” was to be avoided!

I didn’t get a chance to photograph after the full 20 minutes, but you can imagine it was just a more extreme version of what he looked like at 10 minutes.

As it turns out, A was trees, B was grasses, C was mold, cockroaches, dogs and cats.

My poor kiddo is allergic to the outdoors…mold…and cats and dogs.  For those of you just tuning in – we have two dogs.

The doctor said, “Obviously I would tell you to get rid of the dogs, but I’m sure you won’t.”  How could I? They’re like extra kids to us.  I love our pups.

She explained how we can help minimize exposure.  Robbie already has top bunk, so the dogs are never in his bed.  That night, I changed his sheets while he had a nice bath.

that's a Mario in his belly button, in case you're wondering

We’re going to do nightly baths (we typically follow more of an every-other-night-unless-needed routine) – that will keep him from tracking dog dander up to his bed. I explained to him that he needs to try not to snuggle with the dogs any more – no more rubbing his face on them, laying on them, etc. We’ll bathe the dogs more often, too.

As for the grass/tree issues… I think this will be his last soccer season for now. He’s not crazy about soccer anyhow.  (I’m guessing part of his lack of focus has to do with the allergies, too.)  I told him maybe he can try karate next – he liked the sound of that.

We’re going to give him either Claritin or Zyrtec and a dose of Nasonex every morning as well. Today was his first day and he took the nasal spray like a champ!

I’m hoping that his behavior at school might improve as he starts to feel better. I know I’m out of it when I don’t feel well, so I can’t imagine it’s helping him to be all stuffy and sneezy.

I feel like a horrible mom for not doing this sooner.